Dysautonomia International Tweet-A-Thon

Dysautonomia International hosts a Dysautonomia Awareness Tweet-A-Thon each October, as part of our Global Dysautonomia Awareness Month campaign. With the help of many volunteers, we use Twitter to send educational and awareness Tweets to celebrities, media, and other popular Twitter users, some of whom re-Tweet our message to their followers. During the October 2012 Dysautonomia Awareness Tweet-A-Thon we estimate, conservatively, that we reached about 300,000 people on Twitter in one day. Our messages were re-Tweeted by popular music and media personalities, medical societies and more. We saw a spike in the number of visitors to our website, a bump in our followers on Facebook and Twitter and we were contacted by many new patients and even a few doctors interested in obtaining more information about dysautonomia. That is the exact kind of awareness we sought to achieve with the Tweet-A-Thon. Our Dysautonomia Awareness Tweet-A-Thon partners included the following organizations: Center for Hypotension Dysautonomia Divas SDS/MSA Support Group The Dysautonomia Connection Texas Association for Dysautonomia Awareness Dysautonomia Support Group of Illinois Dysautonomia Network of Austin/San Antonio/South Texas Nebraska Dysautonomia Support Group NY POTSies California Potsies Hill Country P.O.T.S. Teens Support Group Tuscon POTS Group POTS Moms Tachycardie Posturale Orthostatique CAPPS: Chicago Area POTS Patients and Spouses We are grateful to all of these organizations and the many individuals who helped make the 2012 Dysautonomia Awareness Tweet-A-Thon a success. We look forward to an even bigger and better 2013 Dysautonomia Awareness Tweet-A-Thon.