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2013 Dysautonomia Patient Conference & Lobby Day
July 6th-8thWashington, D.C.
IMPORTANT NOTICE - PLEASE NOTE THAT THE 2013 CONFERENCE IS SOLD OUT AT THIS TIME. If you are still interested in attending, you can send an e-mail to info@dysautonomiainternational.org and we will put you on our waiting list in the event any additional tickets become available.
Dysautonomia International is delighted to be hosting its first Dysautonomia Patient Conference & Lobby Day this summer. Join us for a fun weekend of educational seminars, engaging speakers, social events and grassroots dysautonomia advocacy.
Conference Registration
Registration for the conference is $150 per person. Registration includes participation in all seminars, presentations, social activities, vendor fair, the Saturday night gala dinner, a Sunday luncheon, snack breaks throughout the conference and bus transportation to and from Capitol Hill Lobby Day meetings. Seating is limited, and registration is available on a first come, first serve basis. Please note that tickets are non-refundable.
Conference Schedule and Program
We are still confirming speakers and topics for the event, but you can view the Preliminary Schedule & Topics. We expect to have some of the world's leading experts on autonomic disorders, inspirational speakers, experts in rehabilitative Physical Therapy and more. Check back often for updates.
Hotel Accommodations
The conference will be held at the Dulles Airport Embassy Suites Hotel in Herndon, Virginia, just outside of Washington, D.C. When you arrive at the hotel, you'll notice the beautiful open-air atrium and a dramatic water feature with the resident swans, George and Martha. All rooms at the hotel are two-room suites, with separate bedroom and living areas, high-speed internet, and two 42-inch flat screen televisions. All of the rooms are wheelchair accessible. The entire hotel is air-conditioned. There is an indoor pool, a Fitness Center and a Business Center on site. The hotel offers free shuttle service to and from Dulles Airport and any other location within five miles of the hotel, between the hours of 5:30 A.M. and 11 P.M.
The hotel has set aside a block of rooms at a preferred rate, providing affordable room rates for our conference participants. The conference rates are $79 (one king bed) and $89 (two double beds) per room per night, plus tax. All rooms also include a sleep sofa. The preferential rate is available on a first come, first serve basis until June 1, 2013. Once the room block is fully reserved, guests can reserve rooms from the hotel at the current market rate.
Conference guests are responsible for reserving their own lodging accommodations. However, please do not call the hotel directly to book your room. In order to qualify for the discounted room rate, you must first register to attend the conference. After payment for your registration is received, we will provide you with a password to obtain the discounted room rate.
Travel Arrangements
Guests will be responsible for making their own travel arrangements to and from the conference. The hotel is three miles from Dulles International Airport, and the hotel provides an air-conditioned free shuttle bus to and from the airport between 5:30 A.M. and 11 P.M. For directions and additional transportation information, visit the hotel's website.
Meals
A cooked-to-order breakfast in the hotel's beautiful atrium is included for all hotel guests. The breakfast includes an omlette station, pastries, fresh fruit, coffee, tea, juice, etc. Dysautonomia International will provide a reception with light fare on Friday night for those who arrive the day before the conference begins, a gala dinner on Saturday night, a luncheon on Sunday, and several snack breaks during the conference presentations. We will do our best to accommodate those with special diets for the group meals and snack breaks. Please indicate any special dietary needs when you register for the conference. Guests will be responsible for their own meals for lunch on Saturday and dinner on Sunday. The hotel has a casual restaurant on site and each hotel room has its own refridgerator, microwave and coffee maker for those who prefer to make their own meals. There are many restaurant and shopping options nearby to the hotel. The free hotel shuttle bus can transport you to any restaurant within a five mile radius of the hotel. .
Activities
We're planning a busy three days, but if you want to explore the area, there are many interesting attractions to visit. Downtown Washington, D.C. is less than 25 miles away and offers plenty of high profile attractions, including The White House, Washington Monument, The Lincoln Memorial, The National Gallery of Art and many Smithsonian Museums. In the local area, there's the new Steven F. Udvar Hazy Air and Space Center just minutes from the hotel, as well as a golf course and upscale shopping malls.
Lobby Day
On Sunday evening, Dysautonomia International will provide a briefing on the issues we will be speaking with our government official about, and an advocacy training session on how to make the best of your lobbying experience. Monday morning, we will take charter buses to Capitol Hill. We will split into smaller groups to attend meetings with multiple congressional offices. We will return back to the hotel as a group to to de-brief on our meetings. After brief closing remarks we will conclude the conference by early afternoon.
Volunteers Needed
Dysautonomia International is an all volunteer organization. We rely on volunteers to help us plan and carry out events like this. Please view our Conference Volunteers page to see how you can help with the 2013 Conference. There are even volunteer opportunities available for people who don't plan to attend the conference.
Sponsorships, Journal Ads, Silent Auction
We are looking for businesses, organizations and individuals interested in sponsoring the 2013 Dysautonomia Conference. We are also selling ads for our commemorative event Journal, and collecting donations of items for our Silent Auction, which will take place on Saturday night of the conference during the Gala dinner. Please contact us at fundraising@dysautonomiainternational.org if you would like more information.
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