Dysautonomia International
Learn More
Get Involved
Press Room
About Us
2014 Conference

For Patients

For Researchers

For Physicians

For Family and Friends

For Educators

For Employers

Like us on Facebook Like us on Facebook
Connect on Linked-In

Follow us on Twitter:

Home >> 2014 Conference


2014 Dysautonomia International Conference & Lobby Day

Thank you for your interest in the 2014 Dysautonomia International Conference & Lobby Day! Please note that the event is SOLD OUT. If you would like to be notified of future events, please send an email to events@dysautonomiainternational.org and ask to be added to the events list.


Dysautonomia International is delighted to be hosting its second Conference & Lobby Day this summer. Join us for a fantastic weekend of educational seminars, engaging speakers, social events, and grassroots dysautonomia advocacy!

Please read everything on this page before registering. The registration link is at the bottom of the page.

Conference Registration

Registration for the conference is $175 per person before May 1, 2014 and $200 thereafter. Registration includes participation in all seminars, presentations, social activities, lunch on Saturday and Sunday, and a Saturday night Awards Banquet. Bus transportation to and from Capitol Hill for Monday's Lobby Day is also included. Seating is limited, and registration will be accepted on a first come, first serve basis. The 2013 conference sold out well in advance, so we recommend registering early.

There is an Autonomic Disorders Workshop Continuing Medical Education course (CME) being held during the conference on July 12th. There is a separate registration fee for the CME. The CME is designed for medical professionals who want to learn more about autonomic disorders. Similar topics will be covered during the regular conference, which is geared towards patients and family members. Download or print out this Autonomic Disorders Workshop flyer to give to your doctors, to encourage them to attend the CME.

Conference Speakers

Some of the world's leading experts on autonomic disorders are joining us, along with other inspirational speakers, experts in rehabilitative Physical Therapy, and more. Topics covered will include Postural Orthostatic Tachycardia Syndrome, Neurocardiogenic Syncope, Autoimmune Autonomic Ganglionopathy, Pure Autonomic Failure, Multiple System Atrophy, Autoimmunity in Dysautonomia, Ehlers-Danlos Syndrome, Mast Cell Disorders, Post-Concussion Autonomic Dysfunction, Gastrointestinal Dysfunction, Sleep Disorders, Neuropathies, Physical Therapy, Pain Management, Coping With Chronic Illness, School Accommodations, Teen Sessions, Parent Chat, Spouse Support, and more.


There is a casual welcome reception at the hotel on Friday, July 11th, from 7:00 to 10:00 p.m. Educational programming will run from Saturday 8:30 a.m. until Sunday 5:00 p.m. For those planning to attend Dysautonomia Lobby Day on Monday, there is a mandatory Lobby Day training on Sunday evening from 7:00 p.m. to 8:00 p.m. The bus trip to Capitol Hill on Monday will leave the hotel around 8:00 a.m. and return between 3:00 p.m. and 4:00 p.m. A detailed schedule will be provided upon arrival at the conference.

Refund Policy

Registration fees will not be refunded after June 15, 2014. Prior to this date, fees can be refunded less a $10 service charge to cover the cost of processing the registration and refund. Registrations are not transferrable. If you have already paid for your registration and would like a refund, please contact us at conference@dysautonomiainternational.org.

Hotel Accommodations

The conference will be held at the Hyatt at Dulles International Airport in Herndon, Virginia, just outside of Washington, D.C. The hotel is fully air-conditioned and has an indoor pool, hot tub, a 24 hour Fitness Center and a Business Center on site. Wheelchair accessible rooms are available upon request. All rooms include complimentary wireless internet access. The hotel provides complimentary shuttle service to and from Dulles Airport. For guests driving to the conference, complimentary self-parking is available.

A block of rooms is being held for conference participants at a preferred rate. Those rates (not including applicable taxes) are:
$ 85 Single occupancy, including 1 complimentary full buffet breakfast per night
$ 90 Double occupancy, including 2 complimentary full buffet breakfasts per night
$100 Triple occupancy, including 3 complimentary full buffet breakfasts per night, and
$110 Quadruple occupancy, including 4 complimentary full buffet breakfasts per night

Preferred rates are available on a first come, first serve basis until June 19, 2014. Once the room block is full, rooms are subject to availability at the current market rate. Guests are responsible for booking their own hotel reservations though this Hyatt Reservations page. Conference registration should be completed prior to booking hotel accommodations. Guests will be required to show conference credentials for admission to the conference area of the hotel.

Travel Arrangements

Guests are responsible for their own travel arrangements to and from the conference. The hotel is located two miles from Dulles International Airport. The hotel provides a complimentary airport shuttle to and from Washington Dulles Airport. For directions and additional transportation information, visit the hotel's website.


Breakfast is available in the Elements restaurant for hotel guests. A full buffet breakfast is included in the preferred room rates listed above. Market rate rooms do not include free breakfast. Light fare will be available at a reception on Friday evening for those who arrive then. Lunch on Saturday afternoon, an awards dinner on Saturday night, and lunch on Sunday will be provided to all conference guests. The hotel has a restaurant on site and there are many restaurant and shopping options nearby for other dining options.

Dysautonomia Lobby Day

A briefing will take place Sunday evening for all those attending Lobby Day on Monday, to review the issues we will raise with our elected officials. There will also be an advocacy training session on how to make the best of your lobbying experience. Monday morning charter buses will take our delegation to Capitol Hill where we will attend meetings with our representatives and/or their staff members in their congressional offices. The buses will return us back to the hotel as a group to debrief after our meetings. The conference will conclude early Monday afternoon after brief closing remarks.

What to Wear?

Dress comfortably for the patient and family oriented programming on Saturday and Sunday. For the Saturday night Awards Banquet, business casual or cocktail attire is suggested. For Dysautonomia Lobby Day on Monday, business attire is required as we are meeting with congressional staffers and elected officials on Capitol Hill. Don't forget a bathing suit if you'd like to make use of the hotel pool or hot tub.

Local Attractions

We're planning a busy three days, but if you'd like to explore the area, there are many interesting attractions to visit. Downtown Washington, D.C. is less than 25 miles away and offers plenty of high profile attractions including The White House, Washington Monument, Lincoln Memorial, The National Gallery of Art and numerous Smithsonian Museums. In the local area, the Steven F. Udvar Hazy Air and Space Center is just minutes from the hotel, as well as golf courses, upscale shopping malls and hiking/biking trails.

Volunteers Needed

Dysautonomia International is an all-volunteer organization. We rely on volunteers to help plan and carry out the conference. Please view the Conference Volunteers page to see how you can help with the conference. There are even volunteer opportunities available for people who can't attend the conference.

Sponsorships, Journal Ads, Charity Auction

There are many Sponsorship Opportunities for businesses, organizations and individuals interested in supporting the 2014 Dysautonomia International Conference, whether or not you are planning to attend. Ads are available for purchase in the commemorative Journal. Donations of items for our Charity Auction are being accepted. The auction will take place during the Awards Banquet on Saturday night. Please contact Jennifer at fundraising@dysautonomiainternational.org if you would like more information.
- 2014 Conference - Conference Registration
- 2014 Conference - Autonomic Disorders Workshop/CME
- 2014 Conference - Speakers
- 2014 Conference - Volunteers
- 2014 Conference - Commemorative Journal
- 2014 Conference - Help Sell Journal Ads

  © Copyright 2012 Dysautonomia InternationalMedical Disclaimer