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Home >> Connect >> // Postural Orthostatic Tachycardia Syndrome >> // Neurocardiogenic Syncope (NCS) >> // Pure Autonomic Failure >> // Syncope/Neurally Mediated Syncope >> Find a Support Group

Find a Support Group



We know how valuable it can be for patients and caregivers to connect with others in their own community who are facing similar challenges. That is why we have compiled the following list of patient-run local dysautonomia support groups. Please note, this listing is provided for informational purposes only and these groups are not managed by Dysautonomia International, although many of our volunteers are active on these groups. If you would like to start a support group in your area, let us know: info@dysautonomiainternational.org.

Global
POTS is the largest Facebook group for POTS patients. It was founded by Dysautonomia Internaional Board Member Jodi Epstein Rhum.

POTSibilities Parents provides a place for parents of children with dysautonomia to connect.

Teens with Dysautonomia provides a community for teens, moderated by college students who have been coping with dysautonomia since their teens.

DINET provides a moderated web based forum for dysautonomia patients.

Australia
POTS and Dysautonomia Australia

Brazil
Email: minazebrablog@gmail.com

Canada
Alberta POTS Group

France
E-mail: tachycardieposturale@yahoo.fr

Germany
POTS (posturales orthostatisches tachykardiesyndrom)
Email: Katie Alba, stop-pots@gmx.de

Ireland
Irish Dysautonomia Awareness

Mexico
Disautonomia Mexico

New Zealand
POTS and Dysautonomia Australia (and surrounds)

United Kingdom
PoTS UK

United States

Arizona
Arizona POTS Alliance

California
California Potsies

Connecticut
NY POTSies serves NYC metro area & surrounding suburbs (Long Island, Westchester, Rockland, Putman and Orange counties, northern NJ, western CT). Group is private so you cannot find it on a search of Facebook. Members meet informally/socially a few times per year. E-mail: nypots@dysautonomiainternational.org.

Massachusetts
POTS in Boston

Minnesota
Minnesota Dysautonomia Support

Missouri
St. Louis POTS Community

New Jersey
NY POTSies serves NYC metro area & surrounding suburbs (Long Island, Westchester, Rockland, Putman and Orange counties, northern NJ, western CT). Group is private so you cannot find it on a search of Facebook. Members meet informally/socially a few times per year. E-mail: nypots@dysautonomiainternational.org.

New York
NY POTSies serves NYC metro area & surrounding suburbs (Long Island, Westchester, Rockland, Putman and Orange counties, northern NJ, western CT). Group is private so you cannot find it on a search of Facebook. Members meet informally/socially a few times per year. E-mail: nypots@dysautonomiainternational.org.

Buffalo Area Dysautonomia Support Group
Area Served: Buffalo and surrounding communities
Contact Name: Dr. Svetlana Blitshteyn
Contact Info: http://drblitshteyn.com

North Carolina
Duke Syncope & Dysautonomia Clinic Support Group

Texas
Dysautonomia Network of the Austin/San Antonio/South Central Texas Area

Mik's Hidden Hearts Alliance
Teen focused dysautonomia group based in Houston area.

Utah
Dysautonomia/POTS in Southern Utah
Email: utah@dysautonomiainternational.org
 

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