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|Home >> Connect >> // Postural Orthostatic Tachycardia Syndrome >> // Neurocardiogenic Syncope (NCS) >> // Pure Autonomic Failure >> // Syncope/Neurally Mediated Syncope >> Find a Support Group |
Find a Support Group
|We know how valuable it can be for patients and caregivers to connect with others in their own community who are facing similar challenges. That is why we have compiled the following list of patient-run local dysautonomia support groups. Please note, this listing is provided for informational purposes only and these groups are not managed by Dysautonomia International, although many of our volunteers are active on these groups. If you would like to start a support group in your area, let us know: firstname.lastname@example.org.
POTS is the largest Facebook group for POTS patients. It was founded by Dysautonomia International Board Member Jodi Epstein Rhum.
POTSibilities Parents provides a place for parents of children with dysautonomia to connect.
Teens with Dysautonomia provides a community for teens, moderated by college students who have been coping with dysautonomia since their teens.
DINET provides a moderated web based forum for dysautonomia patients.
POTS and Dysautonomia Australia
Alberta POTS Group
POTS (posturales orthostatisches tachykardiesyndrom)
Email: Katie Alba, email@example.com
Irish Dysautonomia Awareness
POTS and Dysautonomia Australia (and surrounds)
Arizona POTS Alliance
Colorado Dysautonomia Support Group
POTS in Boston
Minnesota Dysautonomia Support
St. Louis POTS Community
NY POTSies serves POTS and other dysautononmia patients in the NYC metro area & surrounding suburbs (Long Island, Westchester, Rockland, Putman and Orange counties, northern NJ, western CT).
Buffalo Area Dysautonomia Support Group
Area Served: Buffalo and surrounding communities
Contact Name: Dr. Svetlana Blitshteyn
Contact Info: http://drblitshteyn.com
Duke Syncope & Dysautonomia Clinic Support Group
Dysautonomia Network of the Austin/San Antonio/South Central Texas Area
Mik's Hidden Hearts Alliance
Teen focused dysautonomia group based in Houston area.
Dysautonomia/POTS in Southern Utah