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|Home >> About Us >> Board of Directors |
Board of Directors
|Our Board of Directors are dysautonomia patients and caregivers who have volunteered their time and diverse talents. They work closely with our Medical Advisory Board and Patient Advisory Board to develop policies and programs to achieve our organizational goals.
|Lauren Stiles, Esq. - President |
Lauren holds a B.A. in Earth & Space Science, with a Minor in Marine Science, from the State University of New York at Stony Brook. After college she completed a two-year Rockefeller Brothers Fund Fellowship, in which she provided fundraising and public relations consulting services to numerous non-profits. She then enrolled in Pace University School of Law, where she was the recipient of the Issac D. Rubin Clinical Lawyering Award for her work representing several non-profits in complex public interest litigation. After graduating with honors from Pace with a J.D. and a Certificate in Environmental Law, she joined a private practice law firm in the Hamptons area of New York. Lauren has served in leadership positions on government councils, non-profit boards, political organizations and legal professional associations. She developed POTS symptoms overnight at the age 31. After a relentless two year quest to find an underlying cause for her symptoms, she was finally diagnosed with autonomic neuropathy caused by an autoimmune disease, Sjogren's Syndrome. She resides with her husband and Jack Russell terrier in East Moriches, New York.
|Jodi Epstein Rhum - Vice President|
Jodi holds a B.S. in Elementary Education from the University of Illinois. She taught Language Arts in a middle school and volunteered for the Starlight Foundation, an organization that granted wishes to chronically and terminally ill children. She has raised four children, two of whom have POTS and one who has Ehlers-Danlos Syndrome. Jodi had grown up with a mild form of undiagnosed POTS herself, which she only realized once she learned about dysautonomia through her children's diagnoses. Shortly after her oldest child was diagnosed in 2008, she began a quest of raising awareness to her community as well as educating an advocating for the cause. Jodi started a POTS Awareness site, which now has over 3,200 members. She has been on the news and has been interviewed for many newspaper articles trying to increase awareness. She consults with numerous patients and caregivers on a daily basis giving advice and providing direction. She authored a book called, POTS - Together We Stand; Riding the Waves of Dysautonomia, a survival guide, which was a culminating effort to help others who suffer from POTS to learn through her experiences as a mother, a teacher and as a patient.
|Clover Yordanova - Secretary|
Clover holds Bachelors degrees in both Elementary Education and Sociology from the State University of New York at New Paltz. She was a Peace Corp volunteer in Dobrich, Bulgaria, where she taught English to Bulgarian children. She went on to obtain a Masters from Teachers College at Columbia University. She is currently a special education provider in a small private school in Forest Hills, New York. Clover has had symptoms of dysautonomia since 2009. Her symptoms have been improving over time. She currently resides in Jackson Heights New York with her husband and two children.
|Ellen J. Kessler, C.P.A. - Treasurer |
Ellen holds a B.S. in Accounting from the University of Maryland College of Business and Management. She is a Certified Public Accountant and President of Lichtenberg & Associates, PC, a small public accounting firm in Rockville, MD. She has been active for many years in various community organizations, and has previously served in leadership positions on several non-profit boards. Ellen is the mother of three teenagers, two of whom have been diagnosed with POTS. Since the sudden onset of her daughter's symptoms in 2009, and her son's a year later, she has been researching, advocating, and further educating herself and others about POTS and other forms of dysautonomia. Ellen resides in Potomac, MD with her husband and children.