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Home >> Events

Events



To find out about dysautonomia related events, check out our Interactive Global Dysautonomia Map, or review the text events listing below.

If you would like add a dysautonomia related event to our map, please use our map database to enter your event.

If you would like to work with Dysautonomia International on a fundraising event, please check our our Host A Fundraiser page or e-mail us at fundraising@dysautonomiainternational.org.
 

Multiple System Atrophy Awareness Month
, , World Event
Event Date(s): 0000-00-00 to 2013-03-31
Email: pbower@accesscable.net

Details: March is Multiple System Atrophy Awareness Month

http://www.MSAawareness.org

http://www.prlog.org/12062758-march-is-multiple-system-atrophy-awareness-month.html

During the month of March everyone is encouraged to spread awareness of this disease by holding events in their community and fund raising for their favorite MSA charity. We also encourage involving local officials to obtain official proclamations of MSA Awareness Month.

POTSluck
Southern California Area, CA, USA
Event Date(s): 2013-01-01 to 2013-12-31
Contact: Amy Krakower
Email: amy.krakower@gmail.com

Details: Come join Southern California Dysautonomians for lunch and fun.

This event happens several times per year. Contact Amy Krakower to find out when the next POTSluck event will be in Southern California.

Global Dysautonomia Awareness Month
Event Date(s): 2013-10-01 to 2013-10-31
Email: info@dysautonomiainternational.org

Details: Join us in celebrating the 2013 Global Dysautonomia Awareness Month during the whole month of October. We are enouraging everyone to hold awareness and/or fundraising events in their hometown this October. Everything from bake sales, to information tables at a fair, to fancy fundraisers.

Contact fundraising@dysautonomiainternational.org if you would like to work with us on a fundraiser or awareness event. We have handout materials available for these events.

World MSA Day
Event Date(s): 2013-10-10
Email: contact@msa-ams.be

Details: Every year on October 3rd this day will be observed all over the world. We ask everyone to walk a mile and light a candle for Multiple System Atrophy (MSA). Candles are to be lit at 8PM local time around the world creating an unbroken chain of light to unite the world. Register miles walked on or around October 3rd, goal is to collectively walk around the world - 25000 miles. Walk, jog or roll a mile alone or with friends, raise awareness in your community and raise funds for your favorite MSA charity.
http://www.World-MSA-Day.org
http://www.world-msa-day.org/World-MSA-Day/WORLD_MSA_DAY_2012.html

Cupcakes (and coolies) for a Cure
Haddonfield, NJ, USA
Event Date(s): 2014-05-02
Email: ladychiro1@aol.com

Details: 2 8th graders with POTS will be hosting at Haddonfield Middle School.

Dysautonomia International Patient Conference
Washington, DC, USA
Event Date(s): 2014-07-12
Contact: Ellen Kessler
Email: events@dysautonomiainternational.org

Details: Tickets aren't on sale yet, but you can Save the Date for our 2014 Dysautonomia Patient Conferece & Lobby Day, which will be held in the Washington, DC are from July 12-14.

Join with other patients, caregivers and physicians for a weekend filled with educational activities, networking opportunities and good old fashioned fun. We will have break out sessions for younger children, teens, young adults, adults, and family members.

Greater Los Angeles Dysautonomia Support Group
Los Angeles, CA,
Event Date(s): 2014-08-17
Contact: Emily Caldwell, NP Nurse Coordinator
Email: ecaldwel@lacard.com

Details: Support group for dysautonomia patients chaired by Dr. David Cannom, cardiologist and Dr. Joshua Golden, psychiatrist. 2nd annual meeting in greater LA.

- Dysautonomia International Tweet-A-Thon
- Annual Conference

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