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Events
There are two ways to find out about Events on our website. First, you can check out our Interactive Global Dysautonomia Map, and look for the blue pinpoints on the map. Or, you can review the text listing of events on this page.
If you would like add a dysautonomia related event to our Events listing, please use our Interactive Global Dysautonomia Map database to enter your event.
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Global Skype Chat hosted by Dysautonomia International
Event Date/Time: 0000-00-00 8pm Eastern Standard Time 9pm Eastern Standard Time
Email: events@dysautonomiainternational.org
Details: Join us for an informal Skype Chat about the latest news in the dysautonomia community, share your experiences and learn from others. All dysautonomia patients, caregivers, physicians and researchers are welcome. The event is free. You only need a phone OR a laptop with a speaker and microphone to participate.
E-mail us, and we will send you intructions on how to join the Skype chat.
Dysautonomia Lobby Day 2013
Washington, DC, , USA
Event Date/Time: 0000-00-00
Contact: Ellen Kessler, CPA
Email: ekessler@dysautonomiainternational.org
Details: Join Dysautonomia International and other organizations in educating our elected officals and policy makers on the need to increased funding for research on autonomic disorders, the need to expedite drug approvals for medications that help our patient population and more.
Dysautonomia International Patient Conference
Washington, D.C., , USA
Event Date/Time: 0000-00-00
Email: events@dysautonomiainternational.org
Details: Join with other patients, caregivers and physicians for a weekend filled with educational activities, networking opportunities and good old fashioned fun. We will have break out sessions for younger children, teens, young adults, adults, and family members.
International Society for Autonomic Neuroscience - ISAN2013 Meeting
Glessen, , Germany
Event Date/Time: 0000-00-00
Details: //www.isanweb.org/index.html
Hill Country P.O.T.S. Teens Support Group
Fair Oaks Ranch, Texas, USA
Event Date/Time: 2012-09-17 6:00 PM 9:00 PM
Email: Susie12225@att.net
Details: For teens and parents! Contact Susie if you want to join us!
POTSluck
Southern California Area, CA, USA
Event Date/Time: 2012-10-21 to 2012-12-21 12:00 PM 3:00 PM
Email: amy.krakower@gmail.com
Details: Come join Southern California Dysautonomians for lunch and fun.
This event happens several times per year. Contact Amy Krakower to find out when the next POTS Luck will be in Southern California.
Indiana MSA Luncheon
Leavenworth, Indiana, United States
Event Date/Time: 2013-03-01 12:00 PM 5:00 PM
Email: thefroggie1@aol.com
Website: https://www.facebook.com/events/406210909465592/
Details: I'm in Indiana & stirring things up to help support MSA! Trying to get more people from Kentucky & Ohio to attend so if your interested please check on the link below. Our Senator Richard Young WILL be attending along with news crews form both our area & Indianapolis along with newspapers, our Mayor & even the policeman that helped save Tim's shoe :) So please bring your friends & family & pass the word to anyone you may no who would like to attend https://www.facebook.com/events/406210909465592/
Multiple System Atrophy Awareness Month
, , World Event
Event Date/Time: 2013-03-01 to 2013-03-31 12:00 AM 12:00 AM
Email: pbower@accesscable.net
Website: http://www.MSAawareness.org
Details: March is Multiple System Atrophy Awareness Month
http://www.MSAawareness.org
http://www.prlog.org/12062758-march-is-multiple-system-atrophy-awareness-month.html
During the month of March everyone is encouraged to spread awareness of this disease by holding events in their community and fund raising for their favorite MSA charity. We also encourage involving local officials to obtain official proclamations of MSA Awareness Month.
Dysautonomia International Leadership Roundtable
Washington, D.C., , USA
Event Date/Time: 2013-07-01
Email: events@dysautonomiainternational.org
Details: During out annual patient conference we will host a special meeting called the Dysautonomia International Leadership Roundtable. Dysautonomia International will invite representatives from various dysautonomia related advocacy organizations around the globe to engage in a strategic planning session. What are the goals of the dysautonomia community? How can we work together to achieve them? What activities are various organizations working on? What resources can we share in order to be more effective?
Global Dysautonomia Awareness Month
Event Date/Time: 2013-10-01 to 2013-10-31
Email: info@dysautonomiainternational.org
Website: http://www.dysautonomiainternational.org/page.php?ID=119
Details: In 2012, Dysautonomia International declared October to be Global Dysautonomia Awareness Month. Join with us an celebrate dysautonomia awareness each October.
You can find out more about our 2012 event here: http://www.dysautonomiainternational.org/page.php?ID=119
World MSA Day
Event Date/Time: 2013-10-03 8:00 PM
Email: contact@msa-ams.be
Details: Every year on October 3rd this day will be observed all over the world. We ask everyone to walk a mile and light a candle for MSA. Candles are to be lit at 8PM local time around the world creating an unbroken chain of light to unite the world. Register miles walked on or around October 3rd, goal is to collectively walk around the world - 25000 miles. Walk, jog or roll a mile alone or with friends, raise awareness in your community and raise funds for your favorite MSA charity.
http://www.World-MSA-Day.org
http://www.world-msa-day.org/World-MSA-Day/WORLD_MSA_DAY_2012.html
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