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Dysautonomia can sometimes leave us feeling isolated, like we are the only person on the planet with this confusing set of symptoms. You are not alone! Check out our Interactive Global Dysautonomia Map, look for individuals and support groups in your area, add yourself to the map and be counted.
Whether you are a seasoned professional with loads of energy or a teenage patient who is totally bedridden, we have volunteer role for you in our Awareness Army. Many of our volunteer positions do not require any experience - just a willingness to help.
Working together and pooling our resources, we can fund groundbreaking research on autonomic disorders. Research will lead to better treatments, and hopefully someday a cure for each form of dysautonomia. Research can lead to prevention, screening tools and better testing methods too.
Find out about dysautonomia related events like fundraisers, regional meet-ups, and medical conferences.
Learn about the different forms of dysautonomia. Dysautonomia International provides summaries of some of the autonomic conditions we work on. For those of you looking for more in-depth information, we provide links to peer reviewed journal articles.
Financial Assistance Resource Directory
The Reflex Sympathetic Dystrophy Syndrome Association has an excellent comprehensive Financial Assistance Resource Directory for persons with chronic medical conditions. It includes information on federal, state, faith-based and non-profit resources available to disabled persons in the United States.
Patient Advocacy Tips
Dysautonomia International volunteers have compiled these tips for patients. You can teach yourself to be a better advocate for yourself. After all, who cares about YOU more than YOU?
Patient Advocate Foundation
Persons with life threatening or chronic illnesses can obtain free assistance from experienced patient advocates. They offer information regarding co-pay assistance, resources for uninsured or underinsured patients, dealing with insurance denials, COBRA coverage, Family Medical Leave Act, disability accommodations and more.
Free worksheets to help you keep track of important medical issues from the California Office of the Patient Advocate. For example, emergency contact lists, questions to prepare for doctor visits, medication lists, standard vaccines and routine screening tests by age group and gender and questions to ask before a hospital admission.