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Press Room



For press inquiries, please e-mail info@dysautonomiainternational.org.

Dysautonomia International In the News



September 25, 2014 - Delavan Enterprise
Darien woman aims to raise awareness of syndrome that affects nervous system -
Mayor to proclaim October as Dysautonomia Awareness Month in Delavan

August 16, 2014 - Springfield Sun News
Book documents Northwestern Middle School student's battle with POTS

July 24, 2014 - Vanderbilt University Research News
Team effort boosts study of tachycardia syndrome

July 11, 2014 - Huffington Post
Making Hope When the Medical System Can't

July 11, 2014 - Huffington Post
Invisible Illness: How to Sustain Hope?

July 2, 2014 - Dysautonomia International Press Release
Patients Fund Their Own Research When Federal Funding Falls Through

May 20, 2014 - Broadway World
Cyclists to Ride from 850 Miles for MSA and The Multiple System Atrophy Coalition

March 5, 2014 - Ardmoreite.com
Body's Immune Response May Play Role in Rapid Heart Rate

March 4, 2014 - University of Oklahoma Health Sciences Center
Body's Immune Response May Play Role in Rapid Heart Rate

December 22, 2013 - Dysautonomia International Press Release
Dysautonomia International Announces Research Grants

December 6, 2013 - Dysautonomia International Press Release
Fainting Experts Weigh in on Tippy the Fainting Squirrel's Diagnosis

October 31, 2013 - Health Rising
Dysautonomia 101 from Lauren Stiles for Chronic Fatigue Syndrome and Fibromyalgia

October 24, 2013 - Newsday
East Moriches woman draws attention to dysautonomia

October 2013 - The Commercial Appeal
Olive Branch recognizes rare condition of young resident

October 19, 2013 - American Health Lawyers Association Newsletter
Issues in Diagnostic Medicine and Legal Implications for Patients With Rarely Heard of Disorders: Dysautonomia - An Overview written by Dysautonomia International Patient Advisory Co-Chair Amy Krakower, Esq.

September 20, 2013 - Orange County Register
H.B. teen off to Mayo Clinic for help with unusual disorder

September 2013 - Joint Press Release from ResearchMatch and Dysautonomia International Announcing the POTS Research Registry

September 2013 - Montgomery County Road Runners Magazine, Intervals
Interview with Elyse Schwartz

September 8, 2013 - New York Post
Make-A-Wish Fashion Week Dream Come True (a story about Teressa Wright from Dysautonomia International's Patient Advisory Board and her teenaged daughter Sara)

August 20, 2013 - Health Rising
From Chronic Fatigue Syndrome, to Fibromyalgia, to POTS, to Success: One Woman's Journey Through The Medical Profession

February 2013 - Long Island Women's Social Networking Magazine
The Not So Dainty Fainting Lady

December 2012 - The Tide of Moriches Newspaper
New Website Battles Mysterious Illness

November 2012 -The Women's Healing Tree
What on Earth is Dysautonomia?

October 18, 2012 - Buffalo Grove Countryside/Chicago Sun Times
Buffalo Grove aims to carve out a cure

July 9, 2012 - Visalia Delta Times
Childhood at Odds With Disorder


Other Recent Media Coverage of Dysautonomia:



April 11, 2014 - Huffington Post
5 Things to Do When Symptoms Are Not 'All in Your Head'

May 26, 2014 - The Franklin News Post
Rocky Mount girl's dream comes true

May 23, 2014 - The State Press
Life with POTS: Business student graduates despite medical challenges (Note - this is about Dysautonomia International Patient Advisory Board member Crista Procopio)

September 14, 2013 - Rutland & Stamford Mercury (UK)

Grateful Emma Hughes in bid to find her good samaritans

January 7, 2013 - BBC News North East Wales
A teenager with a rare condition which causes her limbs to dislocate is starting specialist treatment.

October 18, 2012 - Neurology Today
Conditioning Is Key to Addressing Symptoms of Orthostatic Intolerance, New Study Suggests

October 18, 2012 - Your Houston News
Teen helps other teens with chronic illnesses

October 6, 2012 - Daily Post
Air Ambulance - heroes of the sky on S4C

September 30, 2012 - itv News (UK)
Mother's battle to get daughter's illness diagnosed

August 31, 2012 - Texas A & M University
Husband Honors Wife's Aggie Dream with Chemistry Scholarship and Research Fund

August 21, 2012 - Times Record News
Long term exercise is perfect prescription for health

July 2012 - UK Department for Work and Pensions
UK Dept. for Work and Pensions recognizes Postural Orthostatic Tachycardia Syndrome

March 17, 2012 - Sunderland Echo
A story about a baby from England with an unspecific form of Dysautonomia.

February 29, 2012 - KOCO Oklahoma City
Doctors launch campaign to raise awareness of syncope's connection to heart problems in some patients.

February 29, 2012 - ABC News
What Astronauts Have Taught Doctors About Fainting. ABC World News Tonight discusses POTS.

February 28, 2012 - ABC News
Fainting Can Indicate Deadly Heart Condition
ABC World News Tonight discusses Cardiogenic Syncope.

February 23, 2012 - Reuters
FDA Panel Recommends Chelsea Therapeutics Drug

February 21, 2012 - KHOU Texas
New syncope clinic opens in Austin, Texas.

February 13, 2012 - Wall Street Journal
Chelsea Therapeutics: FDA Questions Risk-Benefit of Northera
 

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