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Home >> About Us

About Us

Dysautonomia International was founded in March 2012 by a group of patients and family members who wanted to make a difference in the lives of other dysautonomia patients. We have all had our own difficult journeys and had found comfort and strength in speaking with other patients, educating ourselves with accurate medical information and eventually becoming fluent enough in the language of dysautonomia to be able to help direct other patients towards useful resources. We all wished there had been a "one stop shopping" website where we could have gone when we or our loved ones were first diagnosed with dysautonomia. That is our goal for this website, although it is certainly a work in progress.

We all learned the hard way that it is very difficult to find a doctor with expertise in autonomic disorders, and those experts that do exist are overwhelmed with patients and cannot keep up with the demand. We want to improve that situation for current and future patients by expanding capacity at existing specialty centers, and by training new physicians and researchers in the field of autonomic disorders.

And perhaps most importantly, we all recognized that there is a lack of funding for autonomic research, and that the need is tremendous, as there are millions of people across the globe living with dysautonomia. We know that the best way we can help current and future patients is to advance scientific knowledge on autonomic disorders, encourage the development of better treatments, and keep pushing the science forward until we eventually find a cure for each form of dysautonomia. That is our ultimate goal.

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