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|Home >> Research >> For Researchers |
|Dysautonomia International wants to do everything it can to help support individuals and institutions around the globe who are working on research related to autonomic disorders.
We actively raise funds for scientific research relating to autonomic disorders, including but not limited to Neurocardiogenic Syncope, Postural Orthostatic Tachycardia Syndrome, Autoimmune Autonomic Ganglionopathy, Pure Autonomic Failure, and Multiple System Atrophy.
Using our website, e-mail lists, Facebook and Twitter accounts, we are able to assist researchers who are looking recruit patients for IRB approved research. We developed a POTS Registry working with the NIH's disease neutral recruitment program, ResearchMatch. We also encourage patients to sign up for the Autonomic Disorders Consortium Contact Registry.
Lobbying For Additional Government Funding
In the United States, Dysautonomia International supports an overall increase in funding to National Institutes of Health (NIH). Within NIH, we support an increase in the resources allocated to research grants relevant to autonomic disorders and to the NIH's own experts on autonomic disorders within the National Institute of Neurological Disorders and Stroke. We are partnering with dysautonomia advocacy groups in other countries to push for increased funding in overseas.
We host a Dysautonomia Lobby Day during our annual conference in Washington, D.C., bringing patients, family members, friends and medical professionals to meet with members of Congress and federal agencies on matters important to the dysautonomia community. For those who cannot attend in person, we will provide sample letters and information on how to contact their representatives from home.
We also joined the Rally for Medical Research, a disease neutral coalition of private, non-profit and educational organizations demanding increased funding for the NIH. Our volunteers have participated in rallies, lobby days, and 'take action from home' days with the Rally for Medical Research.
If you are interested in applying for a research grant from our organization, or if you would like to learn more about our POTS Registry, please contact us at email@example.com. We also love to hear from clinicians and researchers who are interested in autonomic disorders, so feel free to drop us an e-mail anytime.