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For Researchers
Dysautonomia International wants to do everything it can to help support individuals and institutions around the globe who are working on research related to autonomic disorders.
Research Funding
We actively raise funds for scientific research relating to autonomic disorders, including but not limited to Neurocardiogenic Syncope, Postural Orthostatic Tachycardia Syndrome, Autoimmune Autonomic Ganglionopathy, Pure Autonomic Failure, and Multiple System Atrophy. We will be announcing a application process to obtain grant funding in early 2013.
Fellowship Funding
We also seek to recruit more physicians and researchers to become experts the field of autonomic disorders. We do this by funding research or clinical fellowships at existing centers with autonomic expertise.
Lobbying For Additional Government Funding
In the United States, Dysautonomia International supports an overall increase in funding to National Institutes of Health (NIH). Within NIH, we support an increase in the resources allocated to research grants relevant to autonomic disorders and to the NIH's own experts on autonomic disorders within the National Institute of Neurological Disorders and Stroke. We are partnering with dysautonomia advocacy groups in other countries to push for increased funding in Europe, Australia and Asia.
Beginning in the summer of 2013, we will organize an annual Dysautonomia Lobbying Day to encourage patients and families to visit with their representatives in Washington, D.C., to request additional NIH autonomic funding. For those who cannot attend in person, we will provide sample letters and information on how to contact their representatives.
Assistance With Recruiting Patients
We also recognize that it can sometimes be difficult to recruit patients for studies, particuarly if you are studying a rare condition, or small subset of patients with a relatively common condition. We encourage dysautonomia patients to register with the NIH's Autonomic Disorder's Consortium Research Registry. We have also started our own Dysautonomia International Patient Registry, which will be available to patients online soon.
Research Updates
You can review links to recent journal articles related to autonomic disorders on our Research Updates page. We will update this page on a regular basis.
Contact Us
If you are interested in applying for a research grant or a fellowship from our organization, or if you would like to learn more about our Patient Registry, please contact us at research@dysautonomiainternational.org. We also love to hear from autonomic clinicians and researchers, so feel free to drop us an e-mail anytime.
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